Building a Compassionate and Informed Community.

In an effort to enhance understanding regarding the organ and tissue donation process and to emphasize the importance of encouraging more Canadians to become donors, we have compiled a list of some of the most commonly raised questions about organ and tissue donation.

The Butterfly Effect Association of Canada is a community providing supportive physical and mental health care to organ transplant recipients and donors across Canada.

The information provided on this website, including the following Frequently Asked Questions, is for general informational purposes only. All content is not intended to serve as medical advice. You should always seek the advice of your physician or other qualified health provider with any questions you may have.

FAQ's

Organ Donors

What is living organ donation?

Living organ donation can involve donating an organ, such as a kidney or part of your liver, while you are alive. Many donors choose to give to family, close friends, or even anonymously. The process and eligibility may vary, so we recommend consulting with your transplant center to ensure donation is a safe option for you.

How do I know if I’m eligible to be a living donor?

Every situation is unique and generally, eligibility will depend on factors like health, age, and compatibility with the recipient.  A thorough medical evaluation will help determine if donation is a safe choice. The Butterfly Effect can help connect you with resources, but it is important to discuss your eligibility with your healthcare team.

What’s the process for becoming a living donor?

Typically, the process can involve medical tests such as blood work, scans, and a physical exam to assess your health and compatibility with the recipient. We are here to offer guidance and support, but your transplant center will provide detailed medical instructions.

Will I be compensated for donating an organ?

In Canada, living organ donation is voluntary, and donors are not compensated financially. While there are no direct payments, there may be support for medical costs, travel, and time off work. The Butterfly Effect can help you explore available resources.

Is there any risk to my health as a living donor?

While the procedure carries risks, living organ donation is generally considered safe. Your healthcare team will evaluate your health to minimize these risks. Recovery experiences may vary, but we are here to provide emotional and logistical support as you recover.

Can I donate to someone who isn’t a family member or close friend?

Depending on your eligibility, it is possible to donate to someone who is not a family member or close friend through regulated organ exchange programs, such as paired donation. These programs are typically managed by transplant centers. The Butterfly Effect may assist you in understanding these options and help connect you with appropriate resources.

What kind of support will I receive during and after the donation process?

While your healthcare team provides medical care, we offer emotional and logistical support throughout your journey. We can connect you with counseling and recovery resources to assist you during the process.

Organ Recipients

How do I get on the transplant waiting list?

Each case will vary, and we recommend connecting directly with your medical provider and transplant team. Generally, to get on the transplant list, you’ll need to undergo medical evaluations to determine your eligibility. We are here to provide emotional support and connect you with resources during this process.

How long will I have to wait for a transplant?

Wait times vary depending on organ availability, your medical condition, and your location. While there’s no set timeline, we can support you emotionally and help you navigate this waiting period. Your transplant team will keep you updated on your specific situation.

What happens after I receive a transplant?

After a transplant, you will be monitored by your medical team to ensure the organ is functioning well. Recovery involves medications and follow-up care, which will vary based on your health. We are here to support you with emotional resources and help guide you through recovery.

What is organ rejection, and how can I prevent it?

Organ rejection happens when your body reacts to the new organ as if it were something foreign. To help prevent this, certain treatments, such as immunosuppressants, may be recommended depending on the type of transplant. It’s also important to stay on top of regular check-ups, as they can help catch any early signs if something isn’t quite right. We’re here to provide emotional support and guidance as you navigate these changes.

How can I manage my physical and emotional health after a transplant?

You’ll need to follow the advice of your medical provider very closely, including diet, medications, and physical activity. Emotional health is just as important, and we provide resources to help you manage any challenges you may face. Your transplant team will guide your physical recovery, but we are here for additional support.

Will I need to make any lifestyle changes after the transplant?

After a transplant, lifestyle changes may be recommended, which could include adjustments to your diet, medications, and physical activity. The specific changes you may need to make can vary based on your individual situation. The Butterfly Effect can help connect you with resources to support these adjustments, but your transplant team will provide personalized guidance based on your recovery process.

How can I support my family and caregivers during this time?

Family and caregivers play a crucial role in your recovery. Open communication and accessing support resources are key. The Butterfly Effect can connect you with counseling and support options to help your loved ones navigate their role in your recovery process.

What is the role of The Butterfly Effect Association in my transplant journey?

The Butterfly Effect is here to provide emotional care, connect you with resources, and offer guidance through your transplant journey. Our role is to support you, but your medical care will be managed by your transplant team.

Responses to the above Donors and Recipients questions were derived in part by information provided on various organization and government websites which can be found listed on our “Resources” page.